Stephanie Life of Determination

The Expense of Eating With Celiac Disease from New York Times By LESLEY ALDERMAN Published: August 14, 2009 YOU would think that after Kelly Oram broke more than 10 bones and experienced chronic stomach problems for most of his life, someone (a nurse? a doctor?) might have wondered if something fundamental was wrong with his health. But it wasn’t until Mr. Oram was in his early 40s that a doctor who was treating him for a neck injury became suspicious and ordered tests, including a bone scan. It turned out that Mr. Oram, a music teacher who lives in White Plains, had celiac disease, an underdiagnosed immune disorder set off by eating foods containing gluten, a protein found in wheat, rye and barley. Celiac disease damages the lining of the small intestine, making it difficult for the body to absorb nutrients. Victims may suffer from mild to serious malnutrition and a host of health problems, including anemia, low bone density and infertility. Celiac affects one out of 100 people in th

It has been a year now since I started this blog. I wanted to thank you all for reading and emailing me with questions. It means a lot when I hear from you. It brightens my day when I recieve an email saying that they enjoy and learn a lot. Always feel free to email with any questions or worries. School time is here again. If you have a newbie or experienced celiac child and trying to figure out what to make for his or her lunches. Here are some ideas that will keep lunch making easy. Sandwiches: Corn tortillas, with lettuce, tomatoes,mayo or salad dressing and Oscar Meyer meat. Rice cakes makes a good peanut butter and jelly sandwich. Two plain rice cakes, put Jiffy peanut butter and Smuckers jelly in the middle. They maybe hard, but they taste great. You can even get apple Cinnamon rice cakes, which are good. Quacker ones are gluten free, but don't get the multi grain ones because they contain oats, which those oats are not gluten free. You can use the rice cakes to make meat sa

Two pizza places I heard are starting to do Gluten Free Pizzas: BRICK ROAD PIZZA CO. 1017 Wealthy Street Grand Rapids, Michigan (616) 719-2409 JT's Pizza Their Cascade location are doing Gluten Free on Trial basis. Cascade Ada Forest Hills 616-942-1552

The Bavarian Inn in Frankenmuth Michigan is having a gluten-free wine dinner on Friday, October 9. Five courses and five wines prepared by an award winning chef. They will also be hosting other gluten-free events in the future. If you would like more information on this, their website is www.bavarianinn.com or e-mail them at diningsales@bavarianinn.com.

http://www.glutenfreefaces.com/ This site is amazing. It is the Gluten Free Facebook. This is a type of facebook where you don't feel alone. You meet people that have to deal with the same things that you have to deal with. Or if you are a parent, spouse or family member you can get meet and get advice too. Please try and sign up.

Just to keep everyone posted about dealing with a very bad wound on my right mid thigh that started mid-March and still dealing with it. (his picture is after the wound surgery to clean it up and put the VAC Machine.) How did I get this wound? Well, it is a long story so I will try to make it short. I went to the ER on Saturday morning because I got a pain shot in my back which triggered inflammation from my back surgery in December. The Doctor at the ER was not very nice to me. I went to the ER because I had a Theatre show to do. To make a long story short the nurse came in the room very arrogantly and jammed the shot in my leg and pushed the med very fast into my thigh. It hurt so much. The medication was Noraflex, a muscle relaxer. I had never had a shot hurt that much. The next day (Sunday) my leg looked like someone beaten me with a bat very badly. Then on Monday it got worse and a ER doc said it looks like an allergic reaction to that medication. But then a couple days later it g

Check out this site: https://myceliacid.com/default.aspx Are you or a family member at risk for celiac disease? Find out if you have the genes with MyCeliacID™ the first saliva based, do it yourself genetic test dedicated to celiac disease. Approximately 1 in 100 Americans have celiac disease. Some have common symptoms, such as bloating, diarrhea, and general gastrointestinal distress, while others have symptoms like anemia, infertility, weight loss, or osteoporosis. It is estimated that 60% of children and 41% of adults newly dianosed with celiac disease had no symptoms at all. Now, it’s easier than ever to find out if you have the genes associated with celiac disease. MyCeliacID is the first saliva based, do it yourself genetic test for celiac disease. By ordering this test, you will know within days whether you have the genes for celiac disease. If you don’t have the genes, you are highly unlikely to develop celiac disease in your lifetime. If you do have the genes, you may have cel

try Silver Beach Pizza in St. Joseph, or Willy O’s in South Haven. Here in Grand Rapids, Bostons restaurant on the East Beltline (in the Celebration Cinema plaza) makes gluten free pizza and other gluten free items.

The National Foundation for Celiac Awareness (NFCA) is a non profit organization to help raise awareness of Celiac Disease. I have volunteered for over two years by handing out their brochures at doctors offices and natural health food stores. The organization has a monthly email newsletter. I use to have write articles for the newsletter. Their goal is to help reduce the time to diagnose and reduce te devastating impact of undiagnosed Celiac Disease, including the contraction of other diseases such as cancer, diabetes, osteoporosis, and 'autoimmune cascade.' I was diagnosed late and ended up with many more medical issues. The peditrician didn't know anything about Celiac. I was told that I had Irritable Bowel Syndrome, but It was acutally Celiac for seventeen years. Now I am twenty-three with already ten surgeries. The Foundation is always looking for volunteers. You can visit their website at: http://www.celiaccentral.org

Reading about the Meijers GF taste testing, I thought it would have lots of samples. Come to find out it wasn't much. I went to the Cascade Meijers and there was only one table with samples. It was Pamala's cookies, some type of pizza and the Glutino's pretzels. I went around 1:30pm and was surprise that they didn't have that much to sample. There was more regular samples then that. The best place to samples Gluten Free items is Forest Hills Food, when they have Gluten Free Day. Meijers has alot to catch up compared to Forest Hills Food. At least Meijers was thinking about us gluten free people. Thank You Meijers!!