Showing posts from June, 2009

Our Own Gluten Free Type Facebook. This site is amazing. It is the Gluten Free Facebook. This is a type of facebook where you don't feel alone. You meet people that have to deal with the same things that you have to deal with. Or if you are a parent, spouse or family member you can get meet and get advice too. Please try and sign up.

Busy with Wound Problem

Just to keep everyone posted about dealing with a very bad wound on my right mid thigh that started mid-March and still dealing with it. (his picture is after the wound surgery to clean it up and put the VAC Machine.) How did I get this wound? Well, it is a long story so I will try to make it short. I went to the ER on Saturday morning because I got a pain shot in my back which triggered inflammation from my back surgery in December. The Doctor at the ER was not very nice to me. I went to the ER because I had a Theatre show to do. To make a long story short the nurse came in the room very arrogantly and jammed the shot in my leg and pushed the med very fast into my thigh. It hurt so much. The medication was Noraflex, a muscle relaxer. I had never had a shot hurt that much. The next day (Sunday) my leg looked like someone beaten me with a bat very badly. Then on Monday it got worse and a ER doc said it looks like an allergic reaction to that medication. But then a couple days later it

My Celiac ID (Saliva Testing)

Check out this site: Are you or a family member at risk for celiac disease? Find out if you have the genes with MyCeliacID™ the first saliva based, do it yourself genetic test dedicated to celiac disease. Approximately 1 in 100 Americans have celiac disease. Some have common symptoms, such as bloating, diarrhea, and general gastrointestinal distress, while others have symptoms like anemia, infertility, weight loss, or osteoporosis. It is estimated that 60% of children and 41% of adults newly dianosed with celiac disease had no symptoms at all. Now, it’s easier than ever to find out if you have the genes associated with celiac disease. MyCeliacID is the first saliva based, do it yourself genetic test for celiac disease. By ordering this test, you will know within days whether you have the genes for celiac disease. If you don’t have the genes, you are highly unlikely to develop celiac disease in your lifetime. If you do have the genes, you may have

More Gluten Free Restaurants

try Silver Beach Pizza in St. Joseph, or Willy O’s in South Haven. Here in Grand Rapids, Bostons restaurant on the East Beltline (in the Celebration Cinema plaza) makes gluten free pizza and other gluten free items.

National Foundation For Celiac Awareness

The National Foundation for Celiac Awareness (NFCA) is a non profit organization to help raise awareness of Celiac Disease. I have volunteered for over two years by handing out their brochures at doctors offices and natural health food stores. The organization has a monthly email newsletter. I use to have write articles for the newsletter. Their goal is to help reduce the time to diagnose and reduce te devastating impact of undiagnosed Celiac Disease, including the contraction of other diseases such as cancer, diabetes, osteoporosis, and 'autoimmune cascade.' I was diagnosed late and ended up with many more medical issues. The peditrician didn't know anything about Celiac. I was told that I had Irritable Bowel Syndrome, but It was acutally Celiac for seventeen years. Now I am twenty-three with already ten surgeries. The Foundation is always looking for volunteers. You can visit their website at: