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Gluten Free Food Fair

I just wanted to tell you all that Grand Rapids, MI 49508 is having their annual Gluten Free Food Fair. It is at the Kyuper College on the Beltline. It is free to attend. The fair has lots of information on Celiac Disease and lots of free food. I say that it is wonderful to go to, so you can try things with out purcasing. I always hate when I spend $7.00 or more dollars on something I find I don't like. The Date is Saturday May 17 at 10:00am to 2:00pm

Book Reading/ Update on my Health!

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I checked out a book about a girl who suffered from Celiac Disease. In her book she said that that day she went gluten free, by night she saw results and felt better. But I don't know about you, it never was that quick in feeling better. The said part I have been on the diet now for 8 years and have not had any result, but my blood tests look alot better now. Also in her book she didn't indicate that Celiac Disease is an Auto Immune Disease. She says that she is an expert of knowing alot of about Celiac Disease, but after starting to read her book, I really don't believe it. This summer I am starting to write a book about my suffering with Celiac and it has been hard suffering for me. I should get you all up to date. In the Fall I weighed 54 pounds and went to Mayo with no help. All they wanted to say was that I had an eating disorder. So all fall I was in and out of the hospital. I had a pick line. In September they told me I only had two weeks to live. My mom wanted

Chronic Pancreatitis

I have just been recently diagnosed with Chronic Pancreatitis . My doctor is trying me on different meds , but not having much luck. I am still losing weight and people are thinking I have anorexia because of the Pancreas not working. I am tired of looking this thin! I am also sick of doctors just taking their sweet time helping me.

Find some other resturants

www.pfchangs.com an actual chinese resturant. http://www.adobogrill.com/oldtown/menu.aspx?s=65 in chicago http://www.vincichicago.com/menu.aspx?s=62 in chicago http://csagc.park-ridge.il.us/restaurantlist.htm

This Winter

I thought I should post to tell a little bit about what I have been going through: It all started in October 2006. I have been extremely exhausted. I get about 10 hours of sleep and still want more. I went to U of M to find out what is going on. After 4 or 5 blood tests, ct scan, bone density scan, colonoscopy and endoscopy, four breath tests, camera capsule. They finally came to some of the diagnosis. 1. I have Nonresponsive Celiac Disease. the disease is not going in dormant stage like it should when a person is on a Gluten-Free Diet. Also it is attacking all over. From my heart, lungs. 2. Positive Antibody for either Lupus or Rheumatoid Arthritis . 3. I have to have hiatal hernia surgery because of the sever heartburn and chest pain I am getting. Nexium doesn't help anymore. My surgery is coming up and then I will have to go through lots of tests for Lupus and RA. Hopefully this will come to an end. This will be my eighth surgery in four years.

Is it Gluten Free?

Yes: Foods made from grains (and grain like plants) that do not contain harmful gluten including: corn in all forms (corn flour, corn meal, grits etc..) Rice in all forms (white, brown, basmati and enriched rice etc..). Also amaranth, buckwheat (kasha) Montina, millet, quinoa, tef, sorghum, soy. The followinig ingredients: Annatto, glucose syrup, lecithin, maltodextrin, plain spices, silicon dioxide, starch, food starch and vinegar (only malt vinegar might contain gluten). Also citric, lactic and malic acids as well as sucrose, dextrose, and lactose; and these baking products: arrowroot, cornstarch, guar and xanthum gus, manioc (tapioca flour) potato starch flour and potato starch, vanilla. The following food: Milk, butter, margaine, real (not processed) cheese, plain yogurt, and vegetable oils inlcuing canola. Plan fruits, vegetables (fresh, frozen, canned) meat, seafood, eggs, nuts, beans, and legumes and flours made from them NO Wheat in all forms including spelt, kamut, tritical

Refractory Sprue

A small percentage of patients diagnosed with celiac disease fail to have a long-term favorable response to a strict gluten-free diet. These individuals continue to have symptoms and histologic abnormalities or have symptomatic relapse despite treatment with gluten-free diet and ultimately develop a potentially life-threatening disease known as refractory sprue. Based on data reported in recent studies, the majority of patients with refractory sprue have abnormal intraepithelial lymphocytes and a poor prognosis. The current hypothesis is that refractory sprue represents a transition state to intestinal lymphoma. The true prevalence of this disease entity is unknown. Future multicenter trials are therefore warranted to estimate its prevalence and establish clear therapeutic guidelines. I ntroduction Celiac disease (CD) is a gluten-sensitive enteropathy with a broad spectrum of clinical manifestations. Based on current knowledge, the initial step in disease pathogenesis is the deamidatio